| dc.contributor.author | Clayton, Ellen Wright | |
| dc.contributor.author | Brothers, Kyle B. | |
| dc.contributor.author | Westbrook, Matthew J. | |
| dc.contributor.author | Wright, M. Frances | |
| dc.contributor.author | Myers, John A. | |
| dc.contributor.author | Morrison, Daniel R. | |
| dc.contributor.author | Madison, Jennifer L. | |
| dc.contributor.author | Pulley, Jill M. | |
| dc.date.accessioned | 2022-05-05T18:40:29Z | |
| dc.date.available | 2022-05-05T18:40:29Z | |
| dc.date.issued | 2013 | |
| dc.identifier.citation | 10 Personalized Medicine 349 (2013) | en_US |
| dc.identifier.uri | http://hdl.handle.net/1803/17233 | |
| dc.description | published article on patient awareness | en_US |
| dc.description.abstract | Aim: In this study, we sought to assess patient awareness and perceptions of an opt-out biorepository.
Materials & methods: We conducted exit interviews with adult patients and parents of pediatric patients having their blood drawn as part of their clinical care at Vanderbilt University Medical Center (TN, USA).
Results: 32.9% of all patients and parents of pediatric patients report having heard of the opt-out biorepository, while 92.4% approve of this research effort based on a brief description. Awareness that leftover blood could be used for research increased among adult patients during the study period, from 34.3 to 50.0%. Conclusion: These findings will inform ongoing assessments of the suitability of opt-out and opt-in methods as alternatives to written informed consent for inclusion in a biorepository. | en_US |
| dc.format.extent | 1 PDF (12 pages) | en_US |
| dc.format.mimetype | application/pdf | |
| dc.language.iso | en_US | en_US |
| dc.publisher | Personalized Medicine | en_US |
| dc.title | Patient Awareness and Approval for an Opt-Out Genomic Biorepository | en_US |
| dc.type | Article | en_US |
