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    Patient Awareness and Approval for an Opt-Out Genomic Biorepository

    Clayton, Ellen Wright
    Brothers, Kyle B.
    Westbrook, Matthew J.
    Wright, M. Frances
    Myers, John A.
    Morrison, Daniel R.
    Madison, Jennifer L.
    Pulley, Jill M.
    : http://hdl.handle.net/1803/17233
    : 2013

    Abstract

    Aim: In this study, we sought to assess patient awareness and perceptions of an opt-out biorepository. Materials & methods: We conducted exit interviews with adult patients and parents of pediatric patients having their blood drawn as part of their clinical care at Vanderbilt University Medical Center (TN, USA). Results: 32.9% of all patients and parents of pediatric patients report having heard of the opt-out biorepository, while 92.4% approve of this research effort based on a brief description. Awareness that leftover blood could be used for research increased among adult patients during the study period, from 34.3 to 50.0%. Conclusion: These findings will inform ongoing assessments of the suitability of opt-out and opt-in methods as alternatives to written informed consent for inclusion in a biorepository.
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