Navigating Adult Disability Services Among Latinx Caregivers of Youth with Autism Spectrum Disorder

Abstract

Latinx caregivers of adolescents and young adults with autism spectrum disorder (ASD) face unique barriers in accessing adult disability services for their offspring. Barriers include not having access to resources in their first language, facing discrimination from professionals or service providers, and not having enough information about how to get a specific service. In this study, we examined the unique responses of 45 Latinx caregivers (primarily mothers) before completing a 12-week advocacy training program called ASISTIR. Results demonstrated significant positive correlations between participants' behaviors, comfort in advocating for services, and their sense of empowerment. Participants' disability advocacy was also related to their comfort and proficiency with the English language. Findings from this study shed light on the crucial role of designing culturally and linguistically appropriate resources and content that equip Latinx families in understanding and advocating for adult disability services in the United States. Implications for research and policy are discussed.