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Child and Parental Factors Affecting Coping Strategies and Psychosocial Outcomes for Parents with Children with Prader-Willi Syndrome

dc.contributor.advisorDykens, Elisabeth M.
dc.contributor.authorJurgensmeyer, Sarah
dc.descriptionCourse: (PSY-PC-4999) Honor Thesis Dr. Meg Sayloren_US
dc.description.abstractPrader-Willi Syndrome (PWS) is a rare, genetic neurodevelopmental disability characterized by hyperphagia, mood swings and intellectual disability. Families with a child with PWS often experience increased family tensions and a greater number of stressors, even compared to families with children with different intellectual and developmental disabilities (IDDs). However, there is variation in parental stress, anxiety and depression levels. This study explored the effects of both child factors, such as hyperphagia and severity of behavioral problems, and parental factors, such as coping strategies, on parental stress, anxiety and depression, for parents of children with PWS (n = 154). Results show that child factors significantly impact parental stress, anxiety and depression. Parental usage of rational, active coping strategies is strongly linked to lower stress and depression levels, while parents who employ avoidant, helplessness coping strategies are more likely to have higher levels of stress, depression and anxiety. While there were no significant interaction effects between parental coping strategies and the severity of the child’s behavioral issues on parental stress levels, the best outcomes were achieved when parents did not use avoidant coping strategies and their children had fewer behavioral problems. Future research implications and outcomes are discussed.en_US
dc.description.sponsorshipThesis completed in partial fulfillment of the requirements of the Honors Program in Psychological Sciences. Elisabeth Dykens, Ph.D. and Elizabeth Roof, M.A., L.P.E.en_US
dc.publisherVanderbilt Universityen_US
dc.subjectPrader-Wlli Syndromeen_US
dc.subjectParent Outcomesen_US
dc.subject.lcshPrader-Willi syndrome -- Psychological aspectsen_US
dc.subject.lcshParents of children with disabilitiesen_US
dc.subject.lcshAdjustment (Psychology)en_US
dc.titleChild and Parental Factors Affecting Coping Strategies and Psychosocial Outcomes for Parents with Children with Prader-Willi Syndromeen_US
dc.description.collegePeabody Collegeen_US
dc.description.schoolVanderbilt Universityen_US
dc.description.departmentPsychology and Human Developmenten_US

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