dc.contributor.author | Anders, Shilo | |
dc.contributor.author | Aaron, Hannah | |
dc.contributor.author | Jackson, Gretchen Purcell | |
dc.contributor.author | Novak, Laurie L. | |
dc.date.accessioned | 2020-10-07T20:07:12Z | |
dc.date.available | 2020-10-07T20:07:12Z | |
dc.date.issued | 2019-06 | |
dc.identifier.citation | Anders, S., Aaron, H., Jackson, G. P., & Novak, L. L. (2019). Supporting Caregivers in Pregnancy: A Qualitative Study of Their Activities and Roles. Journal of patient experience, 6(2), 126–132. https://doi.org/10.1177/2374373518785570 | en_US |
dc.identifier.issn | 2374-3743 | |
dc.identifier.uri | http://hdl.handle.net/1803/16198 | |
dc.description.abstract | Background: The significant role of lay caregivers has been explored in chronic and acute illnesses. In pregnancy, caregivers' (eg, the baby's father, friends, and family) roles in promoting the health of the mother and baby are not well understood. Objective: We characterize the activities and roles of pregnancy caregivers and offer opportunities for engaging this important group. Method: We conducted interviews with 29 pregnancy caregivers. Interview transcripts were analyzed inductively, resulting in a coding scheme of actions and roles that pregnancy caregivers perform. Results: The most common actions and roles included searching for information (97%), accompanying patients to medical appointments (69%), and being a source of emotional support (76%). Identified actions and roles fit a patient work framework, including work types identified by Corbin and Strauss: illness, everyday life, biographical, articulation, and invisible. Conclusion: The patient work framework can be employed to describe the activities and roles of pregnancy caregivers. We have contributed new insights into the experiences of pregnancy caregivers and recommendations for educational and technological interventions. | en_US |
dc.description.sponsorship | The author(s) disclosed receipt of the following financial support for the research, authorship, and/or publication of this article: This work was supported by the Agency for Healthcare Research and Quality (grant number R01 HS021496). | en_US |
dc.language.iso | en_US | en_US |
dc.publisher | Journal of Patient Experience | en_US |
dc.rights | Copyright © The Author(s) 2018
This article is distributed under the terms of the Creative Commons Attribution-NonCommercial 4.0 License (http://www.creativecommons.org/licenses/by-nc/4.0/) which permits non-commercial use, reproduction and distribution of the work without further permission provided the original work is attributed as specified on the SAGE and Open Access pages (https://us.sagepub.com/en-us/nam/open-access-at-sage). | |
dc.source.uri | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6558945/ | |
dc.subject | caregiving | en_US |
dc.subject | challenges | en_US |
dc.subject | patient engagement | en_US |
dc.subject | women's health | en_US |
dc.title | Supporting Caregivers in Pregnancy: A Qualitative Study of Their Activities and Roles | en_US |
dc.type | Article | en_US |
dc.identifier.doi | 10.1177/2374373518785570 | |