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A Systematic Literature Review of Individuals' Perspectives on Privacy and Genetic Information in the United States
(PLOS One, 2018)
Concerns about genetic privacy affect individuals' willingness to accept genetic testing in clinical care and to participate in genomics research. To learn what is already known about these views, we conducted a systematic ...
Approaches to Carrier Testing and Results Disclosure in Translational Genomics Research
(Molecular Genetics & Genomic Medicine, 2017)
Background: Clinical genome and exome sequencing (CGES) is primarily used to address specific clinical concerns by detecting risk of future disease, clarifying diagnosis, or directing treatment. Additionally, CGES makes ...
Navigating the Research Clinic--Clinical Interface in Genomic Medicine
(Genetics in Medicine, 2018)
Purpose: The Clinical Sequencing Exploratory Research (CSER) Consortium encompasses nine National Institutes of Health–funded U-award projects investigating translation of genomic sequencing into clinical care. Previous ...